Sue Braiden (CCAL30) (2046)
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Just a small hello
Posted to: Sue Braiden (CCAL30) (2046) by Sue Braiden (CCAL30) (2046), Wed, 06 Sep 2006 21:17:26 PDT
Edited: Wed, 06 Sep 2006 23:44:23 PDT
Feedback score: 62 (* * * * * * * * * *)
Comments: 39 by 27 members
Viewed: 640 times by 83 members
A couple of omidyar.net friends have reached out to me this past week. Some mentioned that people were disappointed that I didn't give a reason for leaving. I feel badly that some are assuming it's been because I was unhappy here, but I really haven't been able to be public about what's been going on with me this past year.
I took sick during the CBC lockout last fall. I thought I had the flu, but I never really recovered. This past winter I had a lung scan done, and it showed a spot. I didn't realize that this had shown up on lung scans the past few years, but the doctor told me this was in fact the case, and that it was getting bigger. At that point, I was hopeful it was scar tissue from the clots that had blown into my lungs a number of times. The folks who spoke with me on the phone knew that I had a hard time breathing and trying to talk for any length of time.
I started to feel a bit better later in the spring, and thought perhaps whatever had been making me sick had sent itself packing, until July when I went to visit family and people did a double take when they saw me. I've lost about 60 pounds for no reason at all, a lot of it muscle mass. I have tremors so bad that I can no longer drive, let along hold a glass or a plate without dropping and breaking it. Some heart damage causing arrhythmia. I have terrible headaches and have a very, very hard time focusing on the screen for any length of time. I have fevers all the time. These are just a few of the more noticeable symptoms, that started to ramp up again in July, and have now left me at the point where it is very difficult to function day to day.
At the beginning of August I blacked out, and my family took me to the doctor. I was incredibly relieved to find out that I have a hyperactive thyroid, and that it's raised my body temperature, excellerated my metabolism into hyperdrive, and has caused most of the major symptoms I've been living with for the better part of a year now. I was relieved because they are able to do radiation therapy on my thryoid for about 6 months, then put me on pills that should bring me back to the land of the living again.
Three weeks ago, my doctor called me back in to tell me that it was not over. My white blood cell count continues to come back a mess, with my lymphocytes 10 times what they should be. They are looking for cancer again.
I wish I could say that I've dealt with this gracefully. I have not. I've retreated from most of the things I did and loved, and basically went into self-preservation mode. I am slowly trying to reclaim a few things, including my contact with the people I sorely miss.
Those of you who know me also know that I am full of piss and vinegar, and will deal with whatever falls in the end with enough of a fight. I feel badly that people were hurt when I quietly slipped away without a word. I did not mean to disrespect the friendships that I've held very dear. I just didn't know how to deal with what I've been going through. A lot of denial, which I'm trying to get out of with the help of my family and a couple of friends who are very close to me here. I'd been refusing to see a doctor the past nine months, but after an arse-kicking have been under the care of a good one this past month.
I hate writing this note at all -- just more of the same old drama -- but it was bothering my conscience when people were good enough to keep finding me and not just letting me go, and when they were telling me that people were disappointed that I'd simply disappeared without a word.
Believe me, I am not ungrateful. Just a little broken at the moment and trying to sort things out again. I miss the people. I miss the activity. I just need time. I know I've had a lot of it already, but I need more. I'll find my way back. I promise.
Meron, Carla, Jackie and Ray, I know it was unfair of me to ask you not to share this, and I thank you for keeping it private for as long as you have. Lars, more than you could know, bud. Haney and Pam, thank you for finding me inworld the times that you did and keeping this to yourself. Being connected to you both made me remember I need to come back here.
Love to you all,
Sue.
(Btw, can anyone tell me how Moses and our friends are doing in the Sudan?)
Comments page 1
By nmw (1876), Wed, 06 Sep 2006 23:42:10 PDT
Edited: Wed, 06 Sep 2006 23:43:37 PDT
Comment feedback score: 0
Sue,
piss and vinegar, eh? -- well, here's mud in your eye! ;D
Sue, really, it is great to hear from you -- even with this less-than-excellent news. You may know that I am a big-time fan of support groups [1]. However, it seems like not knowing which mysterious monster is ailing you is the main problem. Uncertainty sucks.
BTW: did you know that the Internet can be very useful for finding such resources? ;D
Here's hoping for a bright and sunny forecast!
Meanwhile, I've got a big pot of tea (as usual) -- whenever you want a cup, just stop by!
:D nmw
| [1] | The thing is: they have to be done right: too many of these things are the brain-child of some pharmaceutical PR initiative -- no, they have to be independant and patients need to be able to spill their guts without fear of anything coming out. There are some people who can be very helpful WRT the dynamics of small groups. And note that measureing success of such groups by size is like not being able to tell trunk from tail -- it is precisely in small groups that the required intimacy for "successful support" can best develop. WRT diabetes, I have found that the amount and quality of information shared in such groups is unsurpassed (e.g. where to go for help, ratings, tips and tricks for dealing with all sorts of hurdles, etc.) Most of all: knowing that you can touch base with someone who has precisely the same issues going on as you do is a big help (I often say that the support group is better than family). |
By Linda ทรัพยากร Nowakowski (CCAL30) (2530), Thu, 07 Sep 2006 00:22:41 PDT
Comment feedback score: 0
Re Moses (and Eric) look here
By Michael Pattinson (CCAL30) (615), Thu, 07 Sep 2006 01:08:22 PDT
Edited: Thu, 07 Sep 2006 01:09:21 PDT
Comment feedback score: 0
Wow, so well said Susan!!
DITTO, SUPER DITTO!
G*E*T* W*E*L*L* S*O*O*N* S*U*E !!!!!
XOXOXOXOXOXOXOXO
Michael.
Susan Megy said:
Sue...I am so sorry to read this news.
I am confident, from what I "know" of you - you will give it all you've got and come out of this with flying colors - more arse-kicking from Miss B!
Even tho' you've been gone (and of course, sorely missed) you know you have an entire army here at your beck and call, ready to go to battle with you, support you, listen to you when you want to scream...and above all else, continually send positive thoughts, prayers and vibes your way.
Thank you for sharing.
By Sue Braiden (CCAL30) (2046), Thu, 07 Sep 2006 01:58:59 PDT
Comment feedback score: 0
Hello, friends :^) (wiggling my fuzzy bunny slippers are Norbert). So wonderful to find familiar faces here, and really glad to hear that Moses and Eric are back safe and sound (thank you, Linda).
Wanted you to know that I didn't stop thinking about scouting while I fell off the face of the earth for awhile. Still looking for ways to connect what I loved to do here with what I love to do in Second Life:
http://www.omidyar.net/group/secondlife/news/21/
Looking for people to help me spend my money ~winks~ (looking at my fairy-godmother-in-garters ~coughMeroncough~ knowing she always knows the best places to do that).
Night, all.
By Meron s'Mor'z (2163), Thu, 07 Sep 2006 02:22:51 PDT
Comment feedback score: 0
~ Sue said: ~
~winks~ (looking at my fairy-godmother-in-garters ~coughMeroncough~ knowing she always knows the best places to do that). ~
HEY!!! Didn't I make you that t-shirt? ; )
By Thomas Kriese (CCAL30) (2314), Thu, 07 Sep 2006 03:13:20 PDT
Comment feedback score: 0
Thanks for sharing how you're doing with us, Sue, so we can keep your search and recovery in our thoughts and prayers.
You've done so much for us here in the community, it's the least we can do for you.
Get well soon.
By Evonne Heyning (CCAL30) (2442), Thu, 07 Sep 2006 17:03:53 PDT
Comment feedback score: 0
Sue, sweet lovely one, I'm so sad it took us so long to connect and be able to support you on this one. I know you're a tough scoutbabe but there's a reason why friends like to stick with you.....we want to give you big hugs when things are going rough. Thanks for letting us in.
Right now we're sending big giant squoooooshy healing hugs your way.....can you feel them yet?
I am always amazed by your grace and ability to make the most of every situation. You will continue to glow and shine through these moments too. It's not just the radiation that keeps you so beautiful....we recognize and see your brilliance in every encounter.
Moses and Eric posted a great thread recently and seem to have not given up their passion for this work. More to come on scouting in your Looking for Projects thread!
xox and be well Sue! We're pulling for you.
evonne
By Dominique Beyens (CCAL30) (565), Thu, 07 Sep 2006 18:55:58 PDT
Comment feedback score: 0
Love your spirit.
P&V will soon be turned in a good Burgundy wine i'm sure.
By Rory Turner (CCAL30) (1114), Thu, 07 Sep 2006 19:17:42 PDT
Comment feedback score: 0
Love you!
By Debbie Gleason (CCAL30) (2543), Thu, 07 Sep 2006 19:54:33 PDT
Comment feedback score: 0
I'll be thinking of you. Take care.
By Haney Armstrong (CCAL30) (1784), Thu, 07 Sep 2006 20:13:10 PDT
Comment feedback score: 0
Hello Sue!
By Gina Del Vecchio (CCAL30) (871), Thu, 07 Sep 2006 20:43:24 PDT
Comment feedback score: 0
I Love You, Sue.
By David Bale (CCAL30) (1836), Thu, 07 Sep 2006 23:27:20 PDT
Comment feedback score: 4 (* * * *)
Sue,
It's good to see you've not lost your attitude of gratitude where you challenge us all with a very powerful question:
"Who are you going to thank today?"
and go on to say:
It seemed like a simple enough question, but the impact it had on my life was profound.
Each morning I gave myself the task of finding a reason to be grateful. I thought about people that had come in and out of my life the past few days, and others who perhaps I hadn't thought about in a very long time. I thought about teachers who had influenced me, and people who dotted my life's path and shaped the course it would take along the way. I thought about the girl in the coffee shop who had smiled at me and simply said something nice. I thought about the guy in the telephone repair truck who jumped out to open my car door for me so I could get in. I thought about the woman who stood up a city council and talked about why killing the pigeons on the church steps wasn't the right way to go. I thought about my kids, and how their simple, daily examples encouraged me to be curious, and passionate, and hopeful again.
So I started to say thank you, and something amazing happened along the way. People responded and reached back in generous and heartfelt ways. People who'd been feeling unnoticed in their own lives felt appreciated again. People who I hadn't connected with in years came back into my life and enriched it in ways too many to tell. People I'd seen as strangers were becoming friends I'd yet to meet.
The cascade of uplift was profound. This simple thing had not only rescued me from myself, but healed relationships, and cultivated special new ones, and even lead to new projects and opportunities in my life.
So knowing how powerful such a small and simple act can be, I'll ask you this:
Who are YOU going to thank today?
Sue.
Well, first and foremost, today I'm going to thank YOU, Sue:
Thanks for sharing such difficult news.
By Signing Out (1050), Fri, 08 Sep 2006 03:42:37 PDT
Comment feedback score: 0
I am sorry to hear what happened to you Sue.Again i am happy to have you back. I never thought at anyone point that you had left Onet;i knew something was wrong somewhere.I had you in my thoughts.Sue you were dearly missed. We went back to Southern Sudan on 20th March and came back on 14th August.It has been a great experience and we really enjoyed teaching the children and training teachers.What was more satisfying is interacting with the community and assisting them in our best ways.Eric has posted our experiences as Linda has indicated.We are working on a comprehensive report of what we did and it will be ready soon.
Welcome back Sue
By Sue Braiden (CCAL30) (2046), Fri, 08 Sep 2006 06:25:09 PDT
Edited: Fri, 08 Sep 2006 06:43:56 PDT
Comment feedback score: 10 (* * * * * * * * * *)
Y'all just made me cry ... ~laughs~.
Thank you, thank you, thank you, thank you, thank you ...
I am trying to come in each day, if only reading a bit more to try and catch up with what you've all been doing in here. (Did I mention my head is about to explode? There's so much I've missed ...)
Yesterday afternoon brought a bit of good news for me. My white blood cell count came back lower, which made me do the happy dance for hours. I've been on medication for my thryroid for just a handful of days now, but I can already feel the difference, mostly in that there's a crack in the profound depression this darn chemical imbalance has plagued me with. It's not like me to be unhappy, and that's one of the things that's made it so hard to come back this past year. It requires an emotional investment, and at best I was a real downer (well, until people like Meron and Carla and Evonne dragged my arse out of hiding in SL and made me come up for air and giggle now and then).
I want to ask what to look at and where to start again, but I'm already feeling overwhelmed. Just gonna keep pulling the threads at the corners to see what unravels. I'll end up where I need to be.
You are amazing people. Thank you for such grace.
<tight hugs>
Me.
By Stephanie Paone (CCAL30) (405), Fri, 08 Sep 2006 08:01:28 PDT
Comment feedback score: 0
Sue, you are amazing. We haven't spent any time together whatsoever, but your bravery in coming back to share your personal experiences is truly inspiring. Just like your question, Who are you going to thank today? opened doors, your strength of character is going to do the same.
You have many old friends here, and at least one new one.
With hope and gratitude, Stephanie
By Michael Maranda (CCAL30) (3908), Fri, 08 Sep 2006 22:26:16 PDT
Comment feedback score: 3 (* * *)
Sue, let's bring the next O-net gathering to you.
Have you done Open Space yet?
That's my full Rx. An Open-Space O-net gathering, soon.
Any other Healer's care to sign on to this Rx?
Where are you again? Windsor? :)
By Luke Martin (1846), Sat, 09 Sep 2006 15:10:24 PDT
Comment feedback score: 0
A "small hello"? Come on, Sue. You know that even a single word from you is worth its weight in gold bullion. I'm sorry to hear of your struggles, but glad to hear that you're kicking back with full force. You're young, you're full of love, you're well loved, and you've got good karma -- those four will pull you through.
By Mark Grimes (4111), Sat, 09 Sep 2006 15:15:26 PDT
Comment feedback score: 0
Welcome back. Missed you. Lots. To put it mildly.
By Gina Del Vecchio (CCAL30) (871), Sun, 10 Sep 2006 14:43:52 PDT
Comment feedback score: 0
Mark Grimes = (the) Master of Understatement.
By Michael Pattinson (CCAL30) (615), Sun, 10 Sep 2006 15:42:00 PDT
Comment feedback score: 0
Sounds like Sue's "Just a small hello"
:*)
Big news, big welcome, big relief to see Sue re-appear here!
Datz Bigg!
By P (CCAL30) (1419), Mon, 11 Sep 2006 19:51:23 PDT
Comment feedback score: 3 (* * *)
Sue, thanks for your posts. So glad you are feeling better. This community would do anything to support you. Let us all know how we can help!
Miss you, my friend.
See you inworld!
By Susan Megy (CCAL30) (1570), Wed, 06 Sep 2006 22:13:18 PDT
Comment feedback score: 0
Sue...I am so sorry to read this news.
I am confident, from what I "know" of you - you will give it all you've got and come out of this with flying colors - more arse-kicking from Miss B!
Even tho' you've been gone (and of course, sorely missed) you know you have an entire army here at your beck and call, ready to go to battle with you, support you, listen to you when you want to scream...and above all else, continually send positive thoughts, prayers and vibes your way.
Thank you for sharing.